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News & Events

Bill’s Marathon Challenge!

Hello all, my name is Bill Leacy, and I will run in the Los Angeles Marathon on 19 March in honour of my friend, Darren Barnes.

Fundraising 27/02/2023

Cathal’s Omagh Half Marathon!

Cathal Judge is taking on the challenge of the Omagh half marathon in April 2022. 

Fundraising 15/12/2021

Jayden & Melody walk Hadrian’s Wall!

Jayden (8) and Melody (7) are part of a rag taggle group of 13 who will be walking 85 miles, the length of Hadrian’s Wall, to raise funds for Cystinosis Ireland. 

Fundraising 05/08/2021

Claire, Donal and Brin’s walk to Temple Street

As many of you know our beautiful baby boy Brín was diagnosed with a very very rare disease called Cystinosis just last August.

Fundraising 15/07/2021

Super Mario Powers: A Rare 10km for a Cystinosis Cure

It is so incredibly important to us to find a cure for cystinosis. We want to raise vital funds and bring some fun at the same time so Mario, Luigi & Yoshi

Fundraising, Events 01/10/2020